Patient, parent and professional expert perspectives on personalized regenerative implants: a qualitative focus group study

Publication date

2024

Authors

van Daal, ManonORCID 0000-0003-1718-2827
de Kanter, Anne Floor J.
Custers, Roel J.H.
Martínez-Sanz, Elena
Bredenoord, Annelien L.ISNI 000000039414551X
De Graeff, NienkeORCID 0000-0002-0045-4366

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Advisors

Supervisors

Document Type

Article

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Abstract

Background: Perspectives of patients, parents and professional experts on personalized regenerative implants for regenerative medicine purposes are largely unknown. Method: To better understand these perspectives, we conducted four focus groups with professional experts of mixed European nationality (n = 8), Dutch patients with regular implants (n = 8), Dutch and Belgian (n = 5) and Spanish (n = 8) parents of children with cleft palate. Results: Two overarching themes were identified: ‘patient-centered research and care’ and ‘ambivalent attitudes toward personalized regenerative implants’. Discussion: The results reveal that stakeholders should adopt a participatory rather than an impairment discourse and address the ambivalence among professional experts, patients and parents. Conclusion: Considering stakeholder perspectives facilitates ethical and responsible development and use of personalized regenerative implants.

Keywords

ethics, implant, perspectives, qualitative research, regenerative medicine, stakeholder participation, Biomedical Engineering, Embryology

Citation

Daal, M V, de Kanter, A F J, Custers, R J H, Martínez-Sanz, E, Bredenoord, A L & Graeff, N D 2024, 'Patient, parent and professional expert perspectives on personalized regenerative implants : a qualitative focus group study', Regenerative Medicine, vol. 19, no. 7-8, e2386214, pp. 393-406. https://doi.org/10.1080/17460751.2024.2386214