Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study
Publication date
2022-12-05
Authors
Van Hof, Kira S
Hoesseini, Arta
Dorr, Maarten C
Verdonck-de Leeuw, Irma M
Jansen, Femke
Leemans, C René
Takes, Robert P
Terhaard, Chris H.J.
Baatenburg de Jong, Robert Jan
Sewnaik, Aniel
Editors
Advisors
Supervisors
Document Type
Article
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Abstract
(1) Background: The aim of this study was to investigate caregiver burden among informal caregivers of head and neck cancer patients, in relation to distress and quality of life (QoL), and the relationship between informal caregivers and patients. (2) Methods: Data of 234 dyads from the multicenter prospective cohort study Netherlands Quality of life and Biomedical Cohort studies in cancer was used. Caregiver burden, psychological distress, global QoL, physical and social functioning were measured from baseline until 24 months after treatment. (4) Conclusions: This prospective cohort study shows the high burden of caring for HNC patients, the impact of this burden and the interaction between caregiver and patient. We suggest that healthcare professionals include caregivers in counseling and support.
Keywords
caregiver burden, head and neck neoplasms, informal caregivers, patient reported outcome measures, psychological distress, quality of life, Public Health, Environmental and Occupational Health, Pollution, Health, Toxicology and Mutagenesis, Journal Article
Citation
Van Hof, K S, Hoesseini, A, Dorr, M C, Verdonck-de Leeuw, I M, Jansen, F, Leemans, C R, Takes, R P, Terhaard, C H J, Baatenburg de Jong, R J, Sewnaik, A & Offerman, M P J 2022, 'Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer : A Longitudinal Study', International journal of environmental research and public health, vol. 19, no. 23, 16304. https://doi.org/10.3390/ijerph192316304