Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta
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Publication date
2018-09-10
Authors
Mueller, Brigitte
Engelbert, Raoul
Baratta-Ziska, Frances
Bartels, Bart
Blanc, Nicole
Brizola, Evelise
Fraschini, Paolo
Hill, Claire
Marr, Caroline
Mills, Lisa
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Document Type
Article
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Abstract
On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.
Keywords
Mobility, Occupational therapy, Osteogenesis imperfecta, Physiotherapy, Rehabilitation
Citation
Mueller, B, Engelbert, R, Baratta-Ziska, F, Bartels, B, Blanc, N, Brizola, E, Fraschini, P, Hill, C, Marr, C, Mills, L, Montpetit, K, Pacey, V, Molina, M R, Schuuring, M, Verhille, C, de Vries, O, Yeung, E H K & Semler, O 2018, 'Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta', Orphanet Journal of Rare Diseases, vol. 13, no. 1, 158. https://doi.org/10.1186/s13023-018-0905-4