Navigating the life stage after stroke: From Life 2.0 to stroke prevention models of care — A qualitative exploration of younger and middle-aged adult stroke patients' experiences and recommendations

Abstract

Background: Global stroke incidence has been rising among adults 65 years of age or younger. A dearth of research exists exploring and understanding younger and middle-aged adults’ lifestyle-related knowledge and habits along with associated facilitators and/or barriers with the adoption, maintenance, and support needs for development of new brain health interventions, which this study sought to address. Methods: A qualitative study was conducted, followed by virtual, semi-structured focus groups. Data collection and analysis were performed using Goffman's dramaturgical theory to guide the inductive thematic data analysis. Results: A total of 12 participants comprised the sample. Four themes emerged: 1) Front stage: Life 2.0, 2) Back stage: Unseen and invisible challenges, 3) Scripts and audience reaction: Dualism of social influence; and 4) Setting: Standard of care, but to who's standard? Conclusion: Findings contributed to a deeper understanding of factors influencing the adoption of healthy habits and approaches to reconceptualize and re-design brain health interventions that meet the needs, preferences, and priorities of this population.