Towards a Learning Health System for Symptom Management in Hospice Care

Publication date

2024-08-22

Authors

Massa, Marieke
Dermois, Marijke A.
Caffarel, Jennifer
Cramer-Van Der Welle, Christine M.
Boxman, Dianne K.E.
De Graaf, Everlien
Teunissen, Saskia C.C.M.ORCID 0000-0001-8827-461XISNI 000000039561658X
van der Werf, Jurrian

Editors

Advisors

Supervisors

Document Type

Article

Collections

Open Access logo

License

cc_by_nc

Abstract

The reuse of real-world symptom monitoring data is essential in improving the quality of hospice care. A framework for achieving this is a Learning Health System, in which the development of a well-defined dataset is essential. This paper discusses the challenges in the design of a comprehensive dataset, focusing on variations in two electronic health record systems and divergent care processes.

Keywords

Hospice Care, Learning Health System, Symptom Management, Biomedical Engineering, Health Informatics, Health Information Management

Citation

Massa, M, Dermois, M A, Caffarel, J, Cramer-Van Der Welle, C M, Boxman, D K E, de Graaf, E, Teunissen, S S C M & van der Werf, J 2024, 'Towards a Learning Health System for Symptom Management in Hospice Care', Studies in Health Technology and Informatics, vol. 316, 10.3233/SHTI240347, pp. 66-67. https://doi.org/10.3233/SHTI240347