Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

Publication date

2022-05-24

Authors

Jongsma, Karin RORCID 0000-0001-8135-6786
Milota, MeganORCID 0000-0002-2144-4175

Editors

Advisors

Supervisors

Document Type

Article

Collections

Open Access logo

License

cc_by_nc

Abstract

OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.

Keywords

ETHICS (see Medical Ethics), Health policy, MEDICAL ETHICS, Paediatric rheumatology, Quality in health care, General Medicine

Citation

Jongsma, K R & Milota, M M 2022, 'Establishing a multistakeholder research agenda : lessons learned from a James Lind Alliance Partnership', BMJ Open, vol. 12, no. 5, e059006. https://doi.org/10.1136/bmjopen-2021-059006