Recording diagnostic conversations for communication research purposes in pediatric leukemia
Publication date
2025-01
Authors
Buursma, Petra
Schepers, Sasja A.
Kars, Marijke C.
van den Bergh, Esther M.M.
Dors, Natasja
Grootenhuis, Martha A.
Hoogerbrugge, Peter M.
Editors
Advisors
Supervisors
Document Type
Article
Metadata
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License
cc_by_nc_nd
Abstract
Recordings of patient–doctor interactions is a recommended method in communication research. However, concerns are expressed regarding audio-recording of conversations with vulnerable patients. Our study examined experiences of children, parents, and oncologists with recording diagnostic conversations in the pediatric acute leukemia setting. Results show that recording conversations is generally well received by virtually all children and parents. Pediatric oncologists seem to overestimate the expected emotional burden for children and parents, which may lead to gatekeeping by professionals. This in turn may lead to a decrease in patient autonomy and research quality when addressing relevant questions in communication science.
Keywords
audio-recording, communication, diagnostic conversations, gatekeeping, pediatric leukemia, Pediatrics, Perinatology, and Child Health, Hematology, Oncology
Citation
Buursma, P, Schepers, S A, Kars, M C, van den Bergh, E M M, Dors, N, Grootenhuis, M A & Hoogerbrugge, P M 2025, 'Recording diagnostic conversations for communication research purposes in pediatric leukemia', Pediatric Blood and Cancer, vol. 72, no. 1, e31395. https://doi.org/10.1002/pbc.31395