International network for ALS research and care (INARC)
Publication date
2024-11
Authors
Foucher, Juliette
Bunte, Tommy M
Bertone, Vanessa
Verschoor, Romy L.
Couillard, Mathias
Straub, Corey
Genge, Angela
Ingre, Caroline
van den Berg, Leonard
Editors
Advisors
Supervisors
Document Type
Article
Metadata
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License
cc_by
Abstract
The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC’s main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.
Keywords
Amyotrophic lateral sclerosis, cooperation, international, network, report, Neurology, Clinical Neurology
Citation
Foucher, J, Bunte, T M, Bertone, V, Verschoor, R L, Couillard, M, Straub, C, Genge, A, Ingre, C & van den Berg, L H 2024, 'International network for ALS research and care (INARC)', Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, vol. 25, no. 7-8, pp. 795-796. https://doi.org/10.1080/21678421.2024.2362850