Identifying Relevant Concepts for the Development of a Communicative Participation Item Bank for Children and Adolescents: A Systematic Review of Existing Instruments

Abstract

Purpose: This study aims to systematically identify items that measure comnicative participation from measurement instruments that measure (aspects communication and/or participation in children and adolescents (5–18 years with communication disorders, for developing an item bank. Method: A systematic literature search was performed in MEDLINE Embase to search for patient-reported outcome measures (PROMs) or pareports measuring aspects of communication and/or participation in childand adolescents. The individual items of the included measurement instrumwere reviewed on whether they measure communicative participation. The itwere then classified into one of the International Classification of FunctioDisability and Health (ICF) for Children and Youth (World Health Organiza2007) domains of activities and participation. Results: A total of 29 instruments were found, nine PROMs and 20 preports. One hundred forty-five items were identified that measure communtive participation. From these 145 items, 74 were retrieved from PROMs (5and 71 were retrieved from parent reports (49%). The majority of items classified in ICF Domain 7, interpersonal interactions and relationships (73.8followed by Domain 8, major life areas (13.8%), and Domain 9, commsocial, and civic life (8.3%). Only a few items were found in Domains 5 and none was found in Domains 1, 2, and 4. Conclusions: We identified 145 items potentially useful for developing an bank addressing communicative participation in children and adolescents communication disorders. However, item development in collaboration with target population is needed to ensure that these items fully reflect the const.