First international workshop on rehabilitation management and clinical outcome measures for spinal muscular atrophy
Publication date
2017-10-01
Authors
Montes, Jacqueline
Young, Sally Dunaway
Mazzone, Elena
Main, Marion
Bartels, Bart
Civitello, Matthew
Coratti, Giorgia
Young, Sally Dunaway
Duong, Tina
Estilow, Timothy
Editors
Advisors
Supervisors
Document Type
Article
Metadata
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taverne
Abstract
Twenty-one physical and occupational therapists from the USA and Europe (Italy, United Kingdom and Netherlands) met in Dallas, Texas USA on October 16 and 17, 2016. The purpose of this meeting was to review the current landscape of rehabilitation management and clinical outcome measures for spinal muscular atrophy (SMA). The workshop was organized into three sessions entitled: (1) Rehabilitation and Musculoskeletal Considerations; (2) SMA Clinical Outcome Measures; and (3) Rehabilitation Devices for Evaluation and Treatment. A closing session was included to summarize the meeting topics, next steps and proposed action items.
Keywords
Taverne, Pediatrics, Perinatology, and Child Health, Neurology, Clinical Neurology, Genetics(clinical), Journal Article
Citation
Montes, J, Young, S D, Mazzone, E, Main, M, Bartels, B, Civitello, M, Coratti, G, Young, S D, Duong, T, Estilow, T, Gee, R, Glanzman, A M, Kitsuwa-Lowe, J, Main, M, Mayhew, A, Mazzone, E, Mirek, E, Montes, J, Lofra, R M, Pandya, S, Pasternak, A, Ramsey, D, Salazar, R, Turner, J, Wells, J & International Spinal Muscular Atrophy Consortium Clinical Evaluator Working Group 2017, 'First international workshop on rehabilitation management and clinical outcome measures for spinal muscular atrophy', Neuromuscular Disorders, vol. 27, no. 10, pp. 964-969. https://doi.org/10.1016/j.nmd.2017.07.005