Development and outcomes of a patient driven cystic fibrosis quality of care improvement project
Publication date
2023-01
Authors
Noordhoek, Jacquelien J
Jeyaratnam, Joshena
Zomer, Domenique
Gulmans, Vincent A.M.
van der Ent, Cornelis K.
Heijerman, H.
Editors
Advisors
Supervisors
Document Type
Article
Metadata
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License
taverne
Abstract
The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve quality of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient perspective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.
Keywords
Patient involvement quality mark, Patient participation, Patient perspective, Quality of care, Taverne, Pulmonary and Respiratory Medicine, Pediatrics, Perinatology, and Child Health, Journal Article
Citation
Noordhoek, J J, Jeyaratnam, J, Zomer, D, Gulmans, V A M, van der Ent, C K & Heijerman, H G M 2023, 'Development and outcomes of a patient driven cystic fibrosis quality of care improvement project', Journal of Cystic Fibrosis, vol. 22, no. 1, pp. 172-178. https://doi.org/10.1016/j.jcf.2022.07.004