Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database
Publication date
2024-05
Authors
Baliga, Sujith
Abou-Foul, Ahmad K.
Parente, Pablo
Szturz, Petr
Thariat, Juliette
Shreenivas, Aditya
Nankivell, Paul
Bertolini, Federica
Biau, Julian
Blakaj, Dukagjin
Editors
Advisors
Supervisors
Document Type
Article
Metadata
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License
cc_by_nc
Abstract
The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website.
Keywords
Cancer database, Collaborative research, Data harmonisation, Head and Neck cancer, Head and neck squamous cell carcinoma, Oncology, Cancer Research
Citation
Baliga, S, Abou-Foul, A K, Parente, P, Szturz, P, Thariat, J, Shreenivas, A, Nankivell, P, Bertolini, F, Biau, J, Blakaj, D, Brennan, S, Brunet, A, De Oliveira, T B, Burtness, B, Maseda, A C, Chow, V L Y, Chua, M LK, de Ridder, M, Garikipati, S, Hanai, N, Ho, F C H, Huang, S H, Kiyota, N, Klinghammer, K, Kowalski, L P, Kwong, D L, McDowell, L J, Merlano, M C, Nair, S, Economopoulou, P, Overgaard, J, Psyrri, A, Tribius, S, Waldron, J, Yom, S S & Mehanna, H 2024, 'Essential data variables for a minimum dataset for head and neck cancer trials and clinical research : HNCIG consensus recommendations and database', European Journal of Cancer, vol. 203, 114038. https://doi.org/10.1016/j.ejca.2024.114038